Wednesday, January 18, 2012

Die Skin Disease

When born, toddlers Tripp Roth (2 years) is a normal baby who only has one skin blisters. Skin blisters it turns out is a rare disease that has no cure. The baby can survive up to 2 years before it finally died dipelukan the mother who is his favorite place.

Tripp Roth from Ponchatoula, Louisiana managed to outlive all medical predictions for his fight against junctional epidermolysis bullosa that causes her skin to blister when slightly touched.

"He died in my arms. That's happened a few minutes after I lift him from his bed and swung it. He took his last breath peacefully in my arms, in his favorite spot," said Courtney Roth (26 years)

Tripp was born on May 14, 2009, he was born weighing 3.4 kg and in good health. But a moment later the doctor called Courtney and told that his son has a skin disorder epidermolysis bullosa.

"When I heard I do not know what disease it is, how the severity and what happened to my baby. The thing I do is cry," he said.

When born, Tripp has only 1 blister skin abrasions on his head and some on the back. At that time the doctor immediately diagnosed with the condition Epidermolysis bullosa.

The disease is caused by loss of proteins that bind to a single layer of the skin with another layer, so that any movement creates friction between two layers of skin will cause blisters.

When she was 3 months she suffered respiratory problems for the first time, it was his parents consult a physician immediately lungs and eventually assisted with a nebulizer to ease breathing.

His suffering was not just stop there, every few months he began having trouble eating. The mother no longer could use the bottle to give him milk and food. When he was teething, she was in pain so it adds no appetite.

Conditions experienced by Tripp him to fight while breastfeeding because of a wound in the mouth, so doctors had to use a feeding tube instead.

This is because the friction that occurs when she was breast-feeding can cause sores and scars on the skin, eyelids, and upper esophagus and the mouth.

Until now there is no drug that can be used to heal, because it's doctor advised her mother to Tripp's body wrapped in bandages to protect the fragile skin.

"He also spent many months in hospital and breathing condition gets worse, we do not know what will happen next," said Courtney.

He was eventually allowed to go home, and get constant pain medication when she felt acute pain. Previously, he had operated on the eyes and should lose the sense of vision.

Despite having the skin disorder that can not be cured, Tripp is still a child who is very funny, playful and very intelligent although he could not speak and see. But he was blessed with ears and hearing which allowed him to play music, especially drums.

Tripp could not be outside for a year since birth, and doctors estimate her life expectancy could not be more than a year, but he was able to survive until the age of 2 years and 8 months.

But he could not survive with the condition until she died in the arms of the mother which is his favorite place. Funeral ceremony performed at St. Joseph's Catholic Church on January 18, 2012.

"My most precious angel has its wings already own these days, when he was 2 years and 8 months. It's happened a few minutes after I carried her out of bed," said Courtney.

The medical revealed that many babies who died after suffering an infection or other respiratory problems after a blister develops affecting the windpipe.


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